ABS Data released: Innate Variations of Sex Characteristics
On 19 December 2024, the Australian Bureau of Statistics (ABS) has released a first estimate on the size and characteristics of LGBTI+ populations in Australia.
Data collection (page 1 of 4)
For an introduction to data collection issues, see our page on including intersex in forms and our page on researching intersex populations
No IVSC question: the government’s latest decision on the 2026 census
We have today been advised by the ABS that the government will not include a question on innate variations of sex characteristics in the 2026 census, despite including questions on sex, sexuality and gender.
Intersex people and the Australian census
The 2016 and 2021 censuses sought to capture data on people with innate variations of sex characteristics (intersex variations/differences of sex development), but they did so in ways that were harmful and that did not produce reliable, meaningful data. We have an opportunity to do better in the 2026 census.
Lack of LGBTIQ+ inclusion in the next census will adversely impact health outcomes
MEDIA STATEMENT 25 August 2024 Lack of LGBTIQ+ inclusion in the next census will adversely impact health outcomes The Albanese Government’s decision that it will not include questions counting LGBTIQ+ Australians in the 2026 Census (as reported on by Sky News) shows a shameful lack of commitment to addressing the health and wellbeing disparities experienced…
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Submission on proposed superannuation regulations
IHRA has made a submission in response to a public consultation by Commonwealth Attorney General’s Department on proposed superannuation regulations.
Historic medical research grant to improve intersex people’s health and wellbeing
Announcement: A multi-institutional research team has been awarded $5M in federal government funding to help create a safer and better future for people with innate variations in sex characteristics (IVSC).
Submission on use of genetic testing results in insurance underwriting
We have today made a submission to Treasury on use of genetic test results in insurance underwriting.
The last census, and the next
We warmly welcome publication by the Australian Bureau of Statistics (ABS) of analysis of responses to ‘non-binary sex’ in the 2021 census. The report shows a need for reform ahead of the next census.
Constructions of intersex and DSD in Australian data
This paper, by Morgan Carpenter to inform the Australian Institute of Health and Welfare, outlines the contradictory ways Australian data construct intersex and DSD.
Call for action by the new government
IHRA is pleased to share our call for action by the new government. It includes calls for action to promote legislative reform, resource peer support and advocacy, reform medical codes and provide redress.
Statement on Sen. Claire Chandler’s private member’s bill
A statement in response to PM Scott Morrison’s comments on Senator Claire Chandler’s private members bill proposing amendments to the Sex Discrimination Act 1984.
ABS Sex, Gender, Variations of Sex Characteristics and Sexual Orientation Standard
We welcome publication of a new Sex, Gender, Variations of Sex Characteristics and Sexual Orientation Standard by the Australian Bureau of Statistics. This replaces an earlier Sex and Gender Standard. The new Standard facilitates the meaningful and respectful collection of data on people with intersex variations (‘variations of sex characteristics’).
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