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Data Collection

Getting ‘Intersex’ in the CRVS Picture: InterAction and Intersex Asia collaborate on data inclusion

In a landmark moment for intersex advocacy, the Third Ministerial Conference on Civil Registration and Vital Statistics (CRVS) in Asia and the Pacific saw the first-ever high-level discussion dedicated to intersex inclusion within CRVS systems.
6 Aug 2025
On a blue and green background with yellow accents is the following text: Getting "Intersex" in the CRVS Picture. Intersex Asia champions Inclusion at the Third Ministerial Conference
Anti-discrimination

Federal call for action, 2025

We congratulate the Albanese Labor government on its re-election. We look forward to continuing to work with the government, to improve health and wellbeing outcomes for people with innate variations of sex characteristics, to build on key actions from the 47th Parliament, and to deepen engagement across portfolios.
5 May 2025
Australian Parliament in evening, Taras Vyshnya - Adobe Stock
Androgen Insensitivity (AIS)

Trump's new policy on "gender ideology" and "biological truth"

Trump's Executive Order on "gender ideology" and "biological truth" uses a gamete-based definition of sex, which is not directly tested for at birth, and which will have adverse consequences for many intersex people.
23 Jan 2025
Presidential actions: Defending Women From Gender Ideology Extremism And Restoring Biological Truth To The Federal Government. Executive order, January 20, 2025
Community

ABS Data released: Innate Variations of Sex Characteristics

On 19 December 2024, the Australian Bureau of Statistics (ABS) has released a first estimate on the size and characteristics of LGBTI+ populations in Australia.
19 Dec 2024
Mobile phone and website, both showing the Australian Bureau of Statistics. Timon - stock.adobe.com.
Data Collection

No IVSC question: the government's latest decision on the 2026 census

We have today been advised by the ABS that the government will not include a question on innate variations of sex characteristics in the 2026 census, despite including questions on sex, sexuality and gender.
11 Sep 2024
Mobile phone and website, both showing the Australian Bureau of Statistics. Timon - stock.adobe.com.
Data Collection

Intersex people and the Australian census

The 2016 and 2021 censuses sought to capture data on people with innate variations of sex characteristics (intersex variations/differences of sex development), but they did so in ways that were harmful and that did not produce reliable, meaningful data. We have an opportunity to do better in the 2026 census.
4 Sep 2024
Mobile phone and website, both showing the Australian Bureau of Statistics. Timon - stock.adobe.com.
Data Collection

Lack of LGBTIQ+ inclusion in the next census will adversely impact health outcomes

A joint statement with LGBTIQ+ Health Australia: Lack of LGBTIQ+ inclusion in the next census will adversely impact health outcomes.
25 Aug 2024
IHRA - LHA joint statement
Anti-discrimination

Submission on proposed superannuation regulations

IHRA has made a submission in response to a public consultation by Commonwealth Attorney General's Department on proposed superannuation regulations.
26 Apr 2024
Parliament
Ageing

Historic medical research grant to improve intersex people’s health and wellbeing

Announcement: A multi-institutional research team has been awarded $5M in federal government funding to help create a safer and better future for people with innate variations in sex characteristics (IVSC).
4 Apr 2024
Mom, piggyback airplane and child by sky with smile, family bonding or outdoor vacation in summer. Happy family, interracial and black woman back for asian adoption, love or game on holiday adventure.
Anti-discrimination

Submission on use of genetic testing results in insurance underwriting

We have today made a submission to Treasury on use of genetic test results in insurance underwriting.
17 Jan 2024
Parliament
Data Collection

The last census, and the next

We warmly welcome publication by the Australian Bureau of Statistics (ABS) of analysis of responses to 'non-binary sex' in the 2021 census. The report shows a need for reform ahead of the next census.
27 Sep 2022
Inters
Data Collection

Morgan Carpenter on constructions of intersex and DSD in Australian data

This paper, by Morgan Carpenter to inform the Australian Institute of Health and Welfare, outlines the contradictory ways Australian data construct intersex and DSD.
24 Jun 2022
Ambivalent attention and indeterminate outcomes: constructing intersex and DSD in Australian data
Acknowledgement of Country
Our Australian staff and board live and work on First Nations lands. We recognise that sovereignty over this land was never ceded and that this always was and always will be Aboriginal land. We acknowledge the continued connection of Aboriginal and Torres Strait Islander people to land, waterways and community and pay our respects to all First Nations people.
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